The BigMedilytics project, nominated in the BDVe “Success story award” contest
Two success stories about the BigMedilytics project were nominated for the first edition of the BDVe “Success story award” contest on the score of the BDV PPP Summit from the 26th to the 28th of June in Riga. “Mapping the societal dimensions of Big Data to facilitate the use of these technologies in the Healthcare Sector” by Erasmus University, and “Improving patient care through Big Data” by Charité were presented during the “Best Success story award” session the last 26th of June in Riga.
Mapping the societal dimensions of Big Data to facilitate the use of these technologies in the Healthcare Sector
Under the title “Mapping the societal dimensions of Big Data to facilitate the use of these technologies in the Healthcare Sector” Dr. Rik Wehrens, Dr. Anne Marie Weggelaar, and Dr. Prof. Antoinette de Bont from Erasmus University explained the investigation on the societal dimensions of Big Data conducted in 8 European countries (Austria, France, Germany, Ireland, the Netherlands, Spain, Sweden, and the United Kingdom) and its impact.
In order for Europe to play a leading role in Big Data, focusing on the social dimensions of Big Data, including strategies to align these with the technical dimensions, is paramount. For example, differences in health systems and governance structures are important to consider. Moreover, organizations often have to deal with public opinions and ethical considerations in the process of realizing value from Big Data. Third, cultural expectations and political narratives shape the ways Big Data becomes legitimized or questioned in national policies.
An example of the impact of this research is that the participation of several interviewed experts has resulted in a modification of Spanish legislation. The new data protection law has improved the conditions for research in Big Data in healthcare. One of the main changes concerns the issue of consent. Moreover, in the Netherlands, the resulting infographics from this research have become part of the curriculum for future healthcare managers.
Improving patient care through Big Data
During the session, Marcel Naik from Charité presented the Success Story “Improving patient care through Big Data”. This story explains the clinical problems and reality in patients suffering from chronic kidney disease and how to increase patient safety as well as improving patient’s quality of life.
The ultimately endstage renal disease needs the cooperation of different specialties. Reaching out to the specialists for an appointment is tedious and takes time because of different consultation timings. Moreover, the surveillance after renal transplantation involves the home nephrologist, the transplant center as well as other specialties for screening examinations like e.g. the dermatologist to screen for skin cancers or the radiologist for transplant sonography.
BDV PPP Meetup 2019
The Big Data Value PPP Summit was organized by the BDVA and BDVe project, together with the European Commission. The objective of this event is to give visibility to the carried out activities of the PPP, attract new actors to the ecosystem, and strengthen links and collaborations.